Ayesha is only 8 years old, but her condition has stunted her growth. She looks no older than 3. Every night, I watch her sleep, her shallow,
labored breathing a constant reminder of her struggle.
She has Mucopolysaccharidosis, a rare genetic disorder
where the body lacks an enzyme needed to break down sugar molecules. This leads to their accumulation, causing growth issues, breathing difficulties, and progressive damage to vital organs.
A stem cell transplant is her only hope,
but the treatment costs INR 28,00,000.00, a sum impossible for us to afford on our barely enough monthly income
My Daughter’s life Depends on an Expensive
It started four years ago when Ayesha began complaining about irritation on her skin.
We thought it was just a simple rash, but it quickly worsened into dark spots that wouldn’t go away. We visited hospitals and clinics,
one after the other, hoping for answers, but none came.
For months, we watched her suffer as her medicines only made the symptoms worse. It felt like we were stuck in an endless turmoil. Finally, after what seemed like forever, tests revealed the truth. Our little girl had a rare genetic disorder, something we had never even heard of before.
The treatment is extremely expensive.
How do we gather lakhs!?” said my husband with his unstable breath
Ayesha’s condition makes her fight every day. She falls sick very often, often catching colds and fever but the worst part is about her breathing.
There are nights that she wakes up gasping for air,
with that tiny body desperately trying to breathe. We hold her hoping that it will pass, yet the fear that we might lose her never goes away.
These moments have come to be a part of our lives, and no parent should feel this kind of helplessness. Despite this, Ayesha has remained so brave.
She continues to go to school, sitting in her 1st-grade class with a heart full of dreams. She doesn’t know the gravity of the illness, and I wish I could keep it that way
My husband works tirelessly to support our family.
He used to drive an auto but switched to real estate, hoping to earn more. Sadly, his income hasn’t improved much, and certainly not enough to afford the INR 28,00,000.00 treatment our daughter needs to survive.
We’ve already sold all our gold and even our bike to cover her care. We’ve taken on debts but are drowning in them.
With no one to turn to, every day is a struggle, to pay for her medicines or even put food on the table.
I feel like I’m failing both Ayesha and my younger son by not giving them the life they deserve
Despite everything, Ayesha continues to light up our home with her smile.
She doesn’t fully understand the storm we’re in, but she feels it in small ways, like when her studies are interrupted by hospital visits or when she sees her father return home utterly exhausted.
Our helplessness grows every day. We’ve exhausted all our savings, sold our belongings, and taken loans we cannot repay, yet it’s nowhere near enough for her treatment.
Every night, as she sleeps, I pray for a miracle, and you can be that miracle. Please help us save our daughter on time. INR 28,00,000.00is too big for people like us, but the amount that will help my daughter recover on time and live a normal life
Ayesha is only 8 years old, but her condition has stunted her growth. She looks no older than 3. Every night, I watch her sleep, her shallow,
labored breathing a constant reminder of her struggle.
She has Mucopolysaccharidosis, a rare genetic disorder
where the body lacks an enzyme needed to break down sugar molecules. This leads to their accumulation, causing growth issues, breathing difficulties, and progressive damage to vital organs.
A stem cell transplant is her only hope,
but the treatment costs INR 28,00,000.00, a sum impossible for us to afford on our barely enough monthly income
My Daughter’s life Depends on an Expensive
It started four years ago when Ayesha began complaining about irritation on her skin.
We thought it was just a simple rash, but it quickly worsened into dark spots that wouldn’t go away. We visited hospitals and clinics,
one after the other, hoping for answers, but none came.
For months, we watched her suffer as her medicines only made the symptoms worse. It felt like we were stuck in an endless turmoil. Finally, after what seemed like forever, tests revealed the truth. Our little girl had a rare genetic disorder, something we had never even heard of before.
The treatment is extremely expensive.
How do we gather lakhs!?” said my husband with his unstable breath
Ayesha’s condition makes her fight every day. She falls sick very often, often catching colds and fever but the worst part is about her breathing.
There are nights that she wakes up gasping for air,
with that tiny body desperately trying to breathe. We hold her hoping that it will pass, yet the fear that we might lose her never goes away.
These moments have come to be a part of our lives, and no parent should feel this kind of helplessness. Despite this, Ayesha has remained so brave.
She continues to go to school, sitting in her 1st-grade class with a heart full of dreams. She doesn’t know the gravity of the illness, and I wish I could keep it that way
My husband works tirelessly to support our family.
He used to drive an auto but switched to real estate, hoping to earn more. Sadly, his income hasn’t improved much, and certainly not enough to afford the INR 28,00,000.00 treatment our daughter needs to survive.
We’ve already sold all our gold and even our bike to cover her care. We’ve taken on debts but are drowning in them.
With no one to turn to, every day is a struggle, to pay for her medicines or even put food on the table.
I feel like I’m failing both Ayesha and my younger son by not giving them the life they deserve
Despite everything, Ayesha continues to light up our home with her smile.
She doesn’t fully understand the storm we’re in, but she feels it in small ways, like when her studies are interrupted by hospital visits or when she sees her father return home utterly exhausted.
Our helplessness grows every day. We’ve exhausted all our savings, sold our belongings, and taken loans we cannot repay, yet it’s nowhere near enough for her treatment.
Every night, as she sleeps, I pray for a miracle, and you can be that miracle. Please help us save our daughter on time. INR 28,00,000.00is too big for people like us, but the amount that will help my daughter recover on time and live a normal life
